And might be willing to make a phone call? ETA: I’m bumping this again because my friend said they haven’t gotten any calls. Please, Chicago people, post this on facebook, ask your friends - one call to Rep. Davis’ office is all we need to get this rolling. You can also email on his website. I have provided a script below.

This is potentially doxxy so I’ll poof it later. eta - please share to other subblogs if you think people might be interested.

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Would you be willing to call his office to ask him to support a bill creating a National Chagas Awareness Day? Danny Davis is on the Rare Disease Committee and one of my friends, who is on his staff, says he will support the bill if he gets a few constituent calls.

His contact info:
2159 Rayburn House Office Building
Washington, DC 20515
p. (202) 225-5006
f. (202) 225-5641

https://davis.house.gov

Sponsored

Here’s a draft script:

I am calling to ask that Rep Danny Davis please support the passage of a bill for a National Chagas Disease Awareness Day on April 14, 2017, which would coincide with World Chagas Day. I am concerned about the rights and protections of patients with Chagas Disease. Since Rep Danny Davis is on the Rare Disease Committee we would like him to look into this issue.

And here’s some additional info about Chagas for your own reference:

Chagas (CHAH-gus) disease is an inflammatory, infectious disease caused by a parasite found in the feces of the triatomine (reduviid) bug. Chagas disease is common in South America, Central America and Mexico, the primary home of the triatomine bug. Rare cases of Chagas disease have been found in the southern United States, as well.

Also called American trypanosomiasis, Chagas disease can infect anyone, but is diagnosed most often in children. Left untreated, Chagas disease later can cause serious heart and digestive problems. (Source: Mayo Clinic)

On the occasion of the World Chagas Day on April 14th, the Global Chagas Disease Coalition has prepared the document “Breaking the Silence: an Opportunity for Patients with Chagas Disease” that advocates for increasing the access to disease diagnosis and treatment.

A recent bill was enacted in VA last year:

Some other information on Chagas Disease:

.In case you’re wondering why I care, Chagas mostly affects people from Latin America, and many immigrants suffer from Chagas with no access to insurance or healthcare. Even those who do have access to healthcare may find that many doctors are unaware of Chagas and do not know to test for it or recognize common symptoms. You may recognize Chagas as one of the diseases that Martin Shkreli tried to raise drug prices for. Also, on a very personal note, my roommate’s aunt died from complications of Chagas. A national Chagas Awareness day would hopefully raise knowledge in the medical community as well as among the general population about the symptoms of Chagas and how to treat it.

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