I know that some of us around here are into learning about different medical situations & conditions.
Whether that interest started because we, ourselves, are the strange little zebras who have managed to stump our various specialists over the years with our own maladies & near-misses. Or because folks near & dear to us have had their own brushes with medical differences, and that gave us an interest in all the strange, fascinating, and wonderful kinds of variations which can happen in the “typical” combination of muscles/bones/nerves/assorted other cells that makes up a human body.
For me, it’s a combination of both that started in my childhood—from a need for spinal fusion so that I didn’t end up paralyzed myself, to the fact that many of my friends & family members had *something* themselves that made them a bit different than “typical” (spina bifida, cerebral palsy, giftedness, learning disabilities, asthma, pectus excavatum, osteogenesis imperfecta, ankylosing spondylitis, etc.) I was a kiddo with strange medical stuff, who also happened to end up knowing LOTS of kids with “strange medical stuff.”
That’s part of what’s drawn me to my Child Life Assistant degree, and to a career in Special Education—because I understand that even when you have something *different* about you, first & foremost, you’re a kid who WANTS to be a kid & do “normal kid stuff” to the best of your abilities.
And because I’m a geek who is always interested in learning more about our ability as people, to exist in infinitely different (and fascinating!) variations, I ran across some pretty neat stories that I think (at least some of) y’all might like.
Here are some really cool stories about the fascinating ways our bodies can do just what we need them to do, but still manage to be incredibly varied (even among identical twins!), and others on the ways that a lack of understanding/ knowledge by our care providers can impact our lives in surprising ways that we may not even realize, until we find a care provider who *does* look at the whole picture:
A short film about brothers who are identical twins, and who both have NF1 (Neurofibromatosis Type 1), but whose presentations of the disorder exhibit in *entirely* different ways (which is absolutely *fascinating,* because they ARE identical twins!😉)
From Slate, a deeper dive into how it was possible for the lady from Bangladesh who recently gave birth to three babies over a couple months (a singleton, then a set of twins) to do so:
From Woman’s Day, an interesting story on what it can be like to be a woman who has uterine didelphys (which is entirely different from a bicornate uterus!):
And lastly, a deep dive from Spectrum News, on the woman (Grunya Sukhareva) who studied and appears to have accurately diagnosed/discovered Autism in children in Russia & the Ukraine, decades before Asperger & Kanner got credit for doing so.
*AND* her 19-teens definitions apparently correlate to the DSM-5 (current!) definition of the Autism Spectrum more accurately than either man’s did:
Eta, I forgot the one on how doctors can miss an important thing, because they think a patient’s issues are wrapped up in something else: