I had to cancel my second physical therapy session due to the flu. I managed to make it this week, though I may have walking pneumonia (didn’t think so when I went, but I’ve gotten worse since then). I’m supposed to go tomorrow, but I don’t want to infect anyone if I have viral pneumonia. I hate that my body constantly rebels against me. If it isn’t my EDS, it’s my brain with mental illness or my shitty immune system. If they handed out awards for being sick, I’d have the equivalent of an EGOT. I probably shouldn’t have been at work this week, but I’ve exhausted my sick days and can’t afford the lost wages.

I’m also looking for a new primary care doctor because my current one messed up my referrals. I was supposed to get bracing for my hands and injured shoulder, but the referral wasn’t put in. I needed this done before starting PT, but it will be at least a couple of weeks now before I can get in to be fitted since these things are usually custom. I absolutely need something permanent for my hands because no amount of PT can fix the damage. I also need something for my knees and shoulder until I can start working on them. I’d like to be able to climb stairs without hurting myself or falling since my classroom is on the second floor and using the elevator each time feels wasteful.

I saw my coworker who also has EDS the other day. She’s also looking for a new primary care doctor. She sounded interested in seeing my PT, so I’ll probably pass that along to her husband (who also teaches at my school) since she usually works from home. I’m always tempted during times like this to figure out a way to work from home, but I’m not sure I could handle the cabin fever aspect of it.

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